Howell’s CFOH Story

Howell is the coolest 12-year-old you’ll meet! He is an inspiration to many, including the NC Central University and Duke football teams and the Carolina Hurricanes. He was even “signed” by NCCU back in 2014 and after a visit by Howell, Duke Football head coach, David Cutcliffe, tweeted that he is one amazing kid. A country boy at heart, with his John Deere backpack and hat, Howell travels to and from the Brain Tumor Immunotherapy Program at the University of Florida. Howell has been living with a Pineoblastoma stage 4 brain tumor for the last 6 years and it has recently spread to his spine. This clinical trial was the only opportunity to enhance his quality of life and their last chance to stop the spread of Howell’s tumor. CFOH has assisted with multiple flights from Durham to Gainesville, and as of his last visit, he is doing tremendously well.

Having been abandoned by her husband and Howell’s father, Howell’s mom Susan became a single parent, forced to care for her sick child with no assistance. Originally from Asheville, NC, Sue moved to Durham to be closer to Howell’s physicians at Duke. For a time, she had no job, no car and no place to live other than the Ronald McDonald House, where she and Howell would walk to and from his treatments. Through her steadfast perseverance and help from various community supporters, Sue has created a stable and loving home for Howell, and is now able to fully focus on his treatment.

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